This page will be updated when I have news about my health … the latest will always be at the top.
August 3rd: I saw both my doctors last week … or was it the week before? The long story short is I’m ready to start physical therapy and they prescribed me a muscle relaxer. I avoided taking anything for pain all this time and now I’m kicking myself. I feel so much better and all it took was a 5mg pill … shocking!!
July 17th: I finally have news to share …. It’s a long story but I’ll try to shorten it. I went to see my Rheumatologist yesterday for an injection for pain. I’m traveling next week and the lifting of suitcases always hurts my body … even when I feel well. While I was there they were able to look at my MRI results (which I still have not received from that doctor but we won’t talk about that). They said I have three things going on ….but …. we will address it in August … as my appointment yesterday was only for the injections. Bone Spurs in my neck, Stenosis and a bulging disc (also pinched nerves).
The good news is …. it’s not cancer or a tumor. They did say I could start walking to get back in shape …. after they meet with me next month. For now they want me to continue protecting the left side of my body. The doctor reminded me of something yesterday and I’m so thankful. He said these injections are only treating you for pain … they are not fixing your problem. No lifting suitcases and ask for help. I did tell him that people don’t help people my age … he said ASK! Since I don’t want to make my issue worse … I will try to ask … pray I don’t hear a NO this time (I ask someone last year and the person turned away from me).
As for the injections … I had three of them and as of this minute … I’m still in pain and I was awake most of the night … but that could be from taking five naps yesterday. I pray tomorrow I’ll be painfree.
Convention is next week ….. I’m not sure how I’m going to be able to carry my stuff all day …. every day 🙁
Ending note: Yesterday I had two very awesome doctors. They were so nice, gentle and kind to me… I even thanked them as they were leaving for being so kind … and gentle. They even talked to me and actual conversations that did not relate to my health. (I’m going to write a very nice letter thanking them too!) I recently had a run in with a nasty nurse and she tried to put me in my place … I told her that I learned after my son had a bone tumor for three years and it took three doctors to find it and that I know better than to trust that no news is good news. That is not the case!!!
June 15th: Sorry ….. it’s been forever since I updated this page!! We went to Hawaii in May and I lost control of just about everything at home and at work. I’ll try to catch you up now.
I have two MRI’s this week and two more doctor appointments. I still have no answer. I had an EMG in May (that was NOT pleasant) and I see my doctor about that this week. As I said earlier I’m learning to avoid using my left side …. I only carry a few items to the laundry (three trips to load our washing machine). I never go grocery shopping. Pushing a cart doesn’t hurt …. just the lifting of the bags. Mass is still on the left side of my neck … swollen lymph nodes are still present. The only good news in all this is … I’m not worse. I’ll update this page when I know more.
p.s. I just read my words …… they are choppy and all over the place .. I’m headed to Tennessee next week to see my daddy and I have a million and one things to do before then!
Update April 27th: holy cow I can’t believe I’ve not updated this page … I swear time flies!! In the past 10 days I’ve had Xrays on my neck and back … they’ve found a few nodules on my lungs … and I have some bone spurs. They need to do a Cat Scan to determine the nodules … and I still have my appointment on Thursday with KU Medical. I’ll let you know what I find out … the irony of all this is I still don’t know. Someone ask me if I’m feeling better …the truth is no. I’m just learning to deal with the pain and work when I feel well enough. I used to work 10 -15 hour days …. I’m lucky if I work 8 …. my to do list is keeping me focus on what I must get done each day.
Update April 8th: Cat Scan shows I have some swollen lymph nodes in my neck …. blood work shows I have inflammation ……but we still don’t have an answer. GI tests were done yesterday … survived it …. the worse part was drinking the liquid … I still have a sore throat from the upper test and let me just say … don’t eat a peanut butter sandwich the day after those tests ….the tummy does not like it!! I won’t know the results of the biopsies for a week or so … in the meantime the GI doctor said it’s not Crohns …. thank God! But the question of the day is still … what is the problem? My regular doctor called today and she’s going to refer me to KU Medical … I personally have never been there but that’s who found Chase’s bone tumor when everyone else was telling us it was nothing. As for my pain …..I’m sorry I keep forgetting to include that … woke up this morning pain free … mid day I had sharp stabbing pains in left shoulder and arm. The severe pain comes and goes … but it’s always sore …. if that makes sense.
Update April 3rd: Ultrasound on Wednesday and Cat Scan today.
Update April 1st: The past couple days have been rough …. I have developed a new issue and I’m headed to the doctor today. I was close to going to the ER yesterday but Dave talked me off the ledge and I took a hot bath and went to bed. The new issue is I have a large knot or mass on the left side of my throat … and the knot doesn’t hurt .. but the whole area around it is very painful (left arm, chest, shoulders and back). Say a prayer for me!
Update: March 20th Tests are scheduled for April 7th … people have these tests done every day … but I’m still gonna say it …. say a little pray for me …. on April 7th … in the am.
Update: March 19th My appointment with the GI doctor was today … next up … the tests 🙁 Without mentioning all the words …. they will be testing from the top and the bottom …. as expected…. wait …. I did not anticipate they would go thru my mouth to my stomach. Just typing that is too much info and it gives me the willies! I’m waiting to hear back from Dave on what date works for him … since he will have to drive me … and pretty much hold my hand the whole time.
Update: March 15th My appointment with the GI doctor is on Thursday. The good news is … the steroids that I was given for Bronchitis put an end to the pain … for the most part. I had two bad days of pain … but the last week I’ve had almost none. I’m not sure what means … but I’m sure the doctor will tell me.
Update: February 13th Once again I find myself in the wait pattern … my next appointment is March 19th and I’m on the waiting list for a cancellation. I’m able to sleep …. that’s good. But it still hurts to do most activities (walking up and down stairs…but mainly down, washing and drying my hair, washing dishes, cutting paper with my paper trimmer … anything that extends my range of motion). I cut some fabric last week and at the time it didn’t hurt …. but that night was rough .. so I’ll back off on cutting and go back to using pre-cuts. The fed up side of me wants to say “to heck with this I’m going to do what I want” ….but I’ve learned the hard way … it will come back to haunt me!!
Update: February 9th Nothing is ever easy with me … but … things do tend to work out eventually. So, after months of pain and misery (I call being in pain 24/7 for several months misery) we finally have an answer …but I need more tests to figure out the treatment (wouldn’t you know it). Update April: it is not Crohns.
So, here it goes … Crohns Disease. Are you scratching your head? Saying to yourself I thought that was a stomach issue. Well, you’re right …. but what I didn’t know is that it can be very painful to joints …. especially hands, elbows, knees. (Google it … you will see.) I’m still shocked … I never knew (just as I didn’t know a thing about thyroid cancer until I had it). Anyway … the rest of this story may just be more than I’m willing to share (the tests are not pretty and I’m certainly not gonna write some of those words here on my blog … you know what I mean … right?). I’ll update you on how I feel … when or if they prescribe meds. What I know right this minute is as soon as my gut is all straighten out … the pain should disappear without any lasting effects (thank God). What has me troubled is .. I’m still in constant pain and … the tests … yucky yucky yucky! Excuse my childish behavior … it’s no secret in my house that I do not deal well with medical stuff … when accidents happen in our house I always scream at the of my lungs “DAVID” for him to come running and help me … LOL That reminds me of when I fell up the stairs and broke my little finger …many moons ago . .. I ran outside for a neighbor to help me (because Dave was out of town) .. …man the pain was something awful! Sorry for the lane swerve there … just maybe it made you laugh?
Update: February 6th Not much to report today other than …everything is the same. On a positive note I’m sleeping really well thanks to the natural supplements from my chiropractor. I’ve had some crazy dreams this week … which means I’m sleeping! Still waiting to hear results from blood work. I know they said it would take a while …but patience has never been my thing! I continue to try things that may help …. for example the Copper bracelet… it did not help (a month later) so I’ve removed it. I did not wash my hair this week or wash dishes … haven’t stamped or touched my sewing machine ….. stopped using three pillows at night and went to one under my head and one under my arm. So far …. nada (means nothing has worked). The pain in my left foot/leg is better … due to the massive amount of tape on it and if you’d like a good laugh today … imagine me in bathtub twice a day with a garbage bag over my leg. LOL I told Brooke last night someone might have a heart attack if they saw me. With all this gloom and doom we have to find something to laugh about ….right?
Update: February 3rd I’m still waiting on the results of my blood work. The last two days I’ve had a lot of pain!! And …. I think the Curcumin is hurting my stomach and it’s not helped with the pain. My chiropractor told me yesterday to stop all activity that raises my arms above hip level…. grrrr
Update: January 30th I saw the Rheumatologist this morning and it went just as I expected. My regular doctor told me I would need more testing … and that’s what happened. She had lots of questions … and told me that the medicine she thinks will make me feel better could also affect the results of my blood work. So, the first step is blood work ….. went there immediately afterwards. Then based on those results I may need more blood work. In the meantime she told me to take Curcumin 500mg to help with the pain. As soon as I know more I’ll let you know.
Update: January 29th Although I have a whopper of a headache today I’m happy to report that I’m sleeping. The natural meds that the chiropractor gave me … are helping me sleep …but they are not helping with the pain. Tomorrow is my appointment with the Rheumatologist!
Update: January 23rd Two days later the headache is finally gone…. and I’m happy to say I slept pretty good last night. I woke up about three times …. but I was able to go right back to sleep. I feel so good I’m going to head to my office and try to get some work done. It’s crazy because I felt good on Monday and then today is the first day I’ve felt good since…. crazy. I still have the pain … but I’ve told everyone I can handle some of the pain but when you add the pain plus no sleep it’s impossible to do much of anything!
Update: January 21st Woke up with a major headache – entire upper body hurts like someone tossed me in the washing machine.
Update: January 20th I’m headed to my chiropractor in a few hours to see if she can give me any relief for the pain (I was awake most of the night … again!!). I’m counting the hours until January 30th!
January I saw my primary doctor and she mentioned Lupus, Rheumatoid Arthritis, Fibromyalgia and a few other. My blood work ruled out Lupus and I see a Rheumatologist Specialist on January 30th.
In December I could barely function with the lack of sleep and the pain (I’m constantly turning to find a comfortable position ….but there isn’t one …. just laying in bed hurts). I called my thyroid doctor thinking it could be that … she said it was not (that was Christmas week). When I was there I mentioned to her that I had a nose sore …. at the time for three weeks … and that I have had a mouth sore or a sore in my nose for almost three months. She told me to see my regular doctor. I also stopped drinking wine in December for fear it was making things worse (still no improvement).
November I started experiencing pain in my upper body, mainly arms and hands … then it moved to my shoulders and occasionally my legs. I also started having sharp pains in the top of my left foot and my left elbow.
October came and went and I still wasn’t myself. Sleep was still an issue. I saw my thyroid doctor and we discovered that I needed an increase in meds…. she said the right side of my thyroid had probably stopped working and that wasn’t uncommon. With an increase in med my levels returned to normal … I still did not feel well.
In September I noticed I wasn’t feeling myself and dismissed it because I thought I was working a little too much (working on the Retreat and I wasn’t able to sleep).
When I know more I’ll be sure to share it with you.